Mom’s chopped liver!

Does anyone else have this same dynamic in their family? I could be home alone with Eric all day (or all week) and he pretty much does his own thing. He interacts with me – asks me for food or other things he wants, and plays on the computer or hover-board, etc. But whenever Mr. ...

The Year in Review – Bacon Style

Here is a look back at the accomplishments from 2017.  I never intended this post to be so long….. but once I started reminiscing I realized there was truly so much to celebrate and so much that Eric accomplished this year! 1.January It was 10 years since Eric was diagnosed – and wow what progress he ...

Dining Alone at a Table for Two

Mr. Bacon went back to work today…. and Anna is away enjoying some fun in the sun with her friend this week – so that leaves me and my little guy together for a day of fun.   I know I could never compete with Pop Pop and his arctic blast visits to Sesame Place….. ...

If only…

It’s hard to look back at baby pictures.  I see the twinkle in his eye and am reminded about his little budding personality and how he had such a mischievous grin whenever I walked into the room and found his latest “mess.” I was a bit of a paranoid mom. I was scared he was ...

The Bacon Family “favorite things”

Here is a listing of the items we could not live without in our house! 1.The hoverboard….of course – he has had it 2 years and it’s currently being held together by packing tape since he has crashed into the walls several times on it… I wish it came with an odometer – he definitely ...

What if I was in a car accident?

Today while driving Eric to an appointment, a car in the next lane swerved and came very close to hitting us. We were OK and in that moment, not in real danger, but it still sent shivers down my spine. One of the things I worry about is getting into a car accident while driving ...

To My (Almost) Teenager: A Quick Pit Stop

To My (Almost) Teenager:  A Quick Pit Stop
Hey Buddy, So, we’re coming up on your 13th birthday.  Do you believe it?  You’re going to be a teenager.  Time is flashing by like a race car.  I thought we could take a quick pit stop and talk about where we are, how far we’ve come, and our goals and plans for the future. ...

“I cried”

“I cried”
I cried when you were diagnosed I cried because I thought I did something to cause it I cried because I wondered if I would ever hear your voice I cried because I wanted you to live the childhood I imagined for you I cried because I wanted you to have a typical relationship with ...